Our research project was conducted throughout 2020 with the support of Alan Johnson from the Child Poverty Action Group. The report gives a voice to disabled people’s concerns about the perilous nature of their housing tenure and living arrangements and parents’ “anxiety and desperation” with respect to the future of their adult disabled children. Primary research included 656 surveys, two focus groups and 14 interviews, all with disabled people, their whanau or carers. Among the recommendations of this report, the authors call for improved data collection and planning for the housing and care needs of those with disabilities, ensuring information is freely available so that those with disabilities and their whānau can make informed choices, and framing the housing needs of disabled people as an issue of rights, rather than a social or health need.